Alpha-1 Antitrypsin Deficiency

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Support group for people who have Alpha-1 Antitrypsin Deficiency, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Not new to Lyme but I am a newly diagnosed alpha-1...

    Not new to Lyme but I am a newly diagnosed alpha-1 with pi-zz mutation

    Post created 1 month 4 weeks ago

  • Alpha-1 Antitrypsin Deficiency & Myocarditis

    Is there anyone out there with both of these? I have had Alpha 1 since 1998 and Myocarditis twice--once in 2010 and again in 2015. My EF is still around 30 percent. I often wonder if there is some connection.

    Post created 5 months 1 week ago

  • Alpha-1 Antitrypsin Deficiency & Myocarditis

    Is there anyone out there with both of these? I have had Alpha 1 since 1998 and Myocarditis twice--once in 2010 and again in 2015. My EF is still around 30 percent. I often wonder if there is some connection.

    Post created 5 months 1 week ago

  • Seeking to join group on behalf of someone else. I...

    Seeking to join group on behalf of someone else. I think it would be valuable to explore this connection and person is currently unwilling. Hopefully, this person will decide to join soon.

    Developed involuntary movement symptoms and difficulty walking about 5 years ago. Many tests found no cause and eventually was diagnosed with Conversion Disorder. Very recently, diagnosed with Alpha 1 and wondering if there might be a link. That support group exists suggests there might be. Also, of note, movement symptoms began shortly after a very serious paint fume exposure.

    Post created 9 months 1 week ago

  • I am 44 and zz type. I've become more symptomatic ...

    I am 44 and zz type. I've become more symptomatic the last one year and trying to figure out why I have alkolosis

    Post created 10 months 2 days ago

  • I have alpha-1 antitrypsin deficiency. I have esop...

    I have alpha-1 antitrypsin deficiency. I have esophagitis.

    Post created 10 months 1 week ago

  • I'm a 57 yrs old and live in Virginia. I was diagn...

    I'm a 57 yrs old and live in Virginia. I was diagnosed with Alpha 1 zz pheno type in 1999. I'very developed limpoma on my arms, legs, palm of my left hand and breasts. Only a couple you can actually see. I was told by my Gp years ago it was a symptom of Alpha 1

    Post created 10 months 3 weeks ago

  • Hi, I have C.O.P.D. and am trying to find a suppli...

    Hi, I have C.O.P.D. and am trying to find a supplier of Cannabis Oil. Ilise

    Post created 1 year 2 months ago

  • My bp came unstuck about ten years ago. One day i...

    My bp came unstuck about ten years ago. One day it went from 235/125 in the morning to 96/69 at bedtime. How has anyone else dealt with this? It seems to be amping up.

    Post created 1 year 5 months ago

  • will a cortisone shot affect liver panel and ferritin bloodwork

    I got a cortisone shot in each of my thumbs on Sept.15 and am supposed to get a liver function and ferritin bloodwork panel done on Sept.18. Will the cortisone affect my blood work?

    sept.15

    Question created 1 year 9 months ago