Support group for people who have Angiomyolipoma, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
This is Andrea from Ohio. I am 53 years old and was recently diagnosed with bilateral angiomyolipoma, possibly caused by tuberous sclerosis, My doctor is recommending the drug AFINITOR.
Post created 6 days 4 hours ago
I was diagnosed with ms in June 2014 and have been having other issues ever since. An ultrasound last week showed a possible angiomyolipoma, waiting for a ct scan to confirm. Also showed fatty liver and kidneystones
Post created 1 year 6 days ago
Recently had 2nd catscan after collapse due to hemorrhage in AML. The blood had dissipated but the AML is about the same size Aprox 7 cm by 7cm.
Post created 1 year 3 months ago
I am freaking out, just found out today that I have angiomyolipoma. Trying to get some information. Doctor said she is having nephrologist look at catscan for further instructions.
Post created 1 year 4 months ago
I have to take letrozole and I have renal angiomyolipoma
Post created 1 year 8 months ago