Crps

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Support group for people who have Crps, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Has anyone with RDD experienced hypotension while ...

    Has anyone with RDD experienced hypotension while taking nortriptyline and gabapentin?

    Post created 2 weeks 3 days ago

  • I have had crps for 8 months today an ecg showed I...

    I have had crps for 8 months today an ecg showed I have marked sinus bradycardia. I am wondering if it CRPS connected? Could it be caused by gabapentin?

    Post created 2 weeks 4 days ago

  • I'm new to this just wanted to say Hello and tell ...

    I'm new to this just wanted to say Hello and tell you a little about myself.
    I'm a 38 yr old who was diagnosed with CRPS / RSD in April 2011. About 2 years ago I had my D3 tested and It was 18, right now is the highest it has been since it was tested which it is at a 22.

    Post created 3 weeks 3 hours ago

  • My name is Cindy, 54, and I am taking several med...

    My name is Cindy, 54, and I am taking several medications to prevent afib and help blood pressure stay within normal limits. My recent round of afib was this past February, and I was given the blood thinner xarelto. This week, I am having an increased number of bloody noses along with blood in the urine. My cardiologist thinks it must be something else causing the blood in urine, but I have read it is a symptom of xarelto. Does anyone else have this problem, and is it something that I should be very concerned about?
    Thank you

    Post created 1 month 2 days ago

  • I have recently finally been diagnosed with RSD/CR...

    I have recently finally been diagnosed with RSD/CRPS. For a while other doctors thought I might be developing it, however my injury to my spinal cord and shoulder was at work. Doctors didn't want to diagnose me because they are doctors picked and paid for by workers comp. Is there any clinic in the Southwest who specializes in the treatment of CRPS? Im having a lot of challenges to deal with and pain to cope with, I have many questions and get few answers. Now I'm getting painful varicose veins. Thanks, kk

    Post created 1 month 3 weeks ago

  • My name is Amber I am 32 years old. I was diagnos...

    My name is Amber I am 32 years old. I was diagnosed with CRPS in 2014 after a doctor shot me in the shoulder with a Cortizone shot and then I had a response of burning pain down my right arm to my fingers and been like this ever since. I am depressed and anxious and have difficulty and many areas of life and functioning since getting the stupid crps. I found some relief or with blocks, I received for 4 stallion ganglion blocks in the past year. They were effective in improving blood flow and some pain relief. But I'm in a workmans Comp system and it's incredibly slow, so much red tape. So I feel hopeless when the pain never stops. Normal pain is supposed to go away. And this just doesn't. I need to survive this. I have a 6 year old daughter who looks up to me. I was the breadwinner and that's over now because of this stupid constant burning pain. Any advice on what to do from people who are actually experiencing what I am. I would appreciate advice on what you are doing to help you cope with this incredibly difficult ailment. Thank you for your time in advance.

    Post created 2 months 1 day ago

  • Hello everyone. Thank you for letting me join in o...

    Hello everyone. Thank you for letting me join in on this group! I have been trying to find something like this of others who take Mirapex and also have RSD! I have had RSD since 2001 from an infiltrated IV after having major surgery. Surgery was fine but the Phentergan and Demerol shot in the infiltrated IV 3 times during the night killed my Ulna nerve in my arm. developed a blood clot a week later from wrist to elbow. Had tried everything for pain which over time my RSD spread to whole body. Luckily after 2 SCS implanted and having to have last one removed due to infection and numerous nerve blocks and every pain med known I finally found a doctor who put me on Mirapex. I take now 1mg three times a day and it has taken all of the RSD pain and symptoms away!!! Started in 2010 and am still on it now in 2017! I call it my miracle drug! If I am off of it more than 3 days the RSD comes back with a vengeance!! My question is has anyone else had the same results? I have had no side effects from this med and is the only thing I take for my RSD. I weened myself off of the pain meds and patch I had been on for over 9 years and haven't had anymore since! So please does anyone know what statistics of patients with RSD not having symptoms while on Mirapex? I have started a support group on Facebook trying to get others to try this med because if it will do for others what it has done for me , I will have succeeded in my mission of trying to help someone else! Thank you and please if you can help me it would be greatly appreciated!!!

    Post created 3 months 4 days ago

  • Vimpat, crpd & being bipolar

    I just started vimpat does the vimpat control my electric shocks while causing a depression for being bipolar.

    Question created 4 months 2 weeks ago

  • Is suboxone an effective treatment for CRPS

    Hi everybody! I'm reaching out as a mom of an amazing young woman (18 years old) who has suffered with widespread CRPS since she was 10. She has undergone inpatient rehab x 6 weeks and again for 2 weeks over the years utilizing the "Sherry" method-bootcamp-hell but, although she would initially show improvement, she has always relapsed. We have done it all: PT, OT, she tries to exercise every day, gabapentin, ibuprofen, flexeril, and oxycodone 20 mg 4-6-x daily. The meds arent working, the exercise isnt working, and she is miserable. I feel we are at a crossroad. She is getting more tolerant to the opioids, but in this day and age, I fear that she is going to be unable to recieve the opioids, and she will be in deep trouble then. Hers the question. Does suboxone work for the extreme pain that is CRPS? I'm worried it wont be enough. I also worry that she will be labeled an addict, which she definitely is not. If this med is tried and if it fails, I fear it will effect her ability to recieve opioids later. The anti-opioid environment has us all very frightened. I gratefully await your input.

    Question created 5 months 3 weeks ago

  • Is suboxone an effective treatment for CRPS

    Hi everybody! I'm reaching out as a mom of an amazing young woman (18 years old) who has suffered with widespread CRPS since she was 10. She has undergone inpatient rehab x 6 weeks and again for 2 weeks over the years utilizing the "Sherry" method-bootcamp-hell but, although she would initially show improvement, she has always relapsed. We have done it all: PT, OT, she tries to exercise every day, gabapentin, ibuprofen, flexeril, and oxycodone 20 mg 4-6-x daily. The meds arent working, the exercise isnt working, and she is miserable. I feel we are at a crossroad. She is getting more tolerant to the opioids, but in this day and age, I fear that she is going to be unable to recieve the opioids, and she will be in deep trouble then. Hers the question. Does suboxone work for the extreme pain that is CRPS? I'm worried it wont be enough. I also worry that she will be labeled an addict, which she definitely is not. If this med is tried and if it fails, I fear it will effect her ability to recieve opioids later. The anti-opioid environment has us all very frightened. I gratefully await your input.

    Question created 5 months 3 weeks ago