Support group for people who take Dapsone, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
Hello, I am French so sorry for my english. I have the Lyme disease and I tried Dapsone to feel better but now I don't feel well, worst that before, I have Big headaches so I need your help please, I'm scared...
Waiting your answers , I hope
Post created 3 months 3 weeks ago
My sympathies go out to all fellow suffers of chronic abdominal pain with Dapsone . I have been taking this drug for 25 years and have experienced progressive pain on 100 mg / day . I have been extensively investigated ranging from intra- gut camera to laparotomy ! My dermatitis Herpetiformis is very dependent on dapsone and , having finally decided myself that my pain is dapsone related , i have started to reduce the daily dose by 50mgms without much recurrence of the DH blisters . Sadly this has not resulted in any improvement in the quality of the pain which remains severe especially in the early morning and afternoon . I am on a full gluten free diet and otherwise require oxycodone 20mgs to 80 mgs daily as well as a TENS unit .
Seemingly , there is no overtly alternative drug to dapsone on the market , other than sulfa drugs . Does anyone have experience with any other drug as prophylaxis against dermatitis herpetiformis ? Also , does anyone use dapsone gel for breakthrough blisters from DH ?
Post created 3 months 4 weeks ago
I'm a Brazilian dermatologist. I used dapsone to treat dermatitis herpetiformis in my mother.
After 30 days of use of 100 mg per day of the drug she presented loss of muscular strength and paralysis of legs and arms.
I do not know how to try to reverse this symptom. Is there a drug that reverses this effect?
Please, thank you for any kind of help.
Post created 8 months 15 hours ago
Iv got panniculitis and iv been on dapsone for years iv had a flare up at Xmas and for the first time they have treated me with dapsone and steroids together I'm struggling coming off the steroids now and worried I'm going to be on these forever . I'm suffering now with lumps on my chest lumps on my stomach swets as they have reduced my dosage and struggling to walk from pain in my joints . Is there anything anyone's taking for side effects ?
Post created 9 months 2 weeks ago
I am 68 yr old female taking Dapsone for 10 yrs. I have just lost 30 pounds and feel great and have never had blood sugar issues. Now blood test says 386. Could Dapsone be the cause?
Post created 9 months 4 weeks ago
Took Dapsone for about a month and experienced higher and higher blood potassium levels until the level spiked to almost 7. Dapsone was immediately stopped and I was placed on Kayexalate which caused other problems that needed to be addressed immediately. At this point I am not on Dapsone and really do not want to return to it.
Post created 10 months 2 weeks ago
I am diagnosed with Lambert- Eaton Myasthenic Syndrome, I am seeking support from others than can identify with my condition, it is difficult for me to find others that can empathize with me. I am currently participating in an FDA study and taking DAP, a medication pending approval from the FDA.
Question created 1 year 5 months ago
Hi I have been taking Dapsone for 9 days and I am now starting to feel really tired will this go off?
Post created 1 year 7 months ago
I have a child with Linear IGA Dermatosis, on Dapsone, and another with autism. I'm wondering if there is a link
Post created 1 year 7 months ago
Dapsone Can taken by hepatitis B patient ? if no why ? if Yes than what is the procedure or test should be Done?
Infected with Hansen disease and Hepatitis B(as per doctor stopped medicine for B), LFT Normal and DNA is also normal, but my legs and hands has always pain sine 5 years, some parts of legs and hands no sense , its Mum. i can do work, i can walk but not continuously and no lifting heavy stuff as well.
Doctor suggested if LFT and DNA normal than can go for Dapsone for life long for Hansen disease reaction ,
after taking Dapsone Feel good on legs and hands little bit, but little pain in stomach
want to know why i get Pain in stomach(both left side and right side , little bit pain), this will increase my DNA count Load? Or liver effects.
Or can i continue Dapsone? and do regular check-up for DNA viral Load and LFT?
Is there any Medicine for Hansen disease reaction and Hepatitis B ?
I do visit doctor after 2 months for regular checkups , since 5 years,
Question created 1 year 9 months ago
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