Support group for people who take Dapsone, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
Iv got panniculitis and iv been on dapsone for years iv had a flare up at Xmas and for the first time they have treated me with dapsone and steroids together I'm struggling coming off the steroids now and worried I'm going to be on these forever . I'm suffering now with lumps on my chest lumps on my stomach swets as they have reduced my dosage and struggling to walk from pain in my joints . Is there anything anyone's taking for side effects ?
Post created 2 weeks 5 days ago
I am 68 yr old female taking Dapsone for 10 yrs. I have just lost 30 pounds and feel great and have never had blood sugar issues. Now blood test says 386. Could Dapsone be the cause?
Post created 1 month 2 days ago
Took Dapsone for about a month and experienced higher and higher blood potassium levels until the level spiked to almost 7. Dapsone was immediately stopped and I was placed on Kayexalate which caused other problems that needed to be addressed immediately. At this point I am not on Dapsone and really do not want to return to it.
Post created 1 month 2 weeks ago
I am diagnosed with Lambert- Eaton Myasthenic Syndrome, I am seeking support from others than can identify with my condition, it is difficult for me to find others that can empathize with me. I am currently participating in an FDA study and taking DAP, a medication pending approval from the FDA.
Question created 8 months 1 week ago
Hi I have been taking Dapsone for 9 days and I am now starting to feel really tired will this go off?
Post created 10 months 1 week ago
I have a child with Linear IGA Dermatosis, on Dapsone, and another with autism. I'm wondering if there is a link
Post created 10 months 2 weeks ago
Dapsone Can taken by hepatitis B patient ? if no why ? if Yes than what is the procedure or test should be Done?
Infected with Hansen disease and Hepatitis B(as per doctor stopped medicine for B), LFT Normal and DNA is also normal, but my legs and hands has always pain sine 5 years, some parts of legs and hands no sense , its Mum. i can do work, i can walk but not continuously and no lifting heavy stuff as well.
Doctor suggested if LFT and DNA normal than can go for Dapsone for life long for Hansen disease reaction ,
after taking Dapsone Feel good on legs and hands little bit, but little pain in stomach
want to know why i get Pain in stomach(both left side and right side , little bit pain), this will increase my DNA count Load? Or liver effects.
Or can i continue Dapsone? and do regular check-up for DNA viral Load and LFT?
Is there any Medicine for Hansen disease reaction and Hepatitis B ?
I do visit doctor after 2 months for regular checkups , since 5 years,
Question created 1 year 3 weeks ago
I am a 35yr old female. I have been suffering from urticarial vasculitis. For the last 4 mons been in hospital 6x had the EPI pen 4x. I have Lupus, and now i am showing RA. I am starting Dapsone, and i wanted to make sure that the methadone will be okay. My body is always 90% cover in hives when the go down they turn black and blue
Post created 1 year 1 month ago
I'm just starting
Post created 1 year 3 months ago
has anyone noticed short term memory loss with the drug dapsone?
Question created 1 year 4 months ago
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