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My sympathies go out to all fellow suffers of chro...

  • My sympathies go out to all fellow suffers of chronic abdominal pain with Dapsone . I have been taking this drug for 25 years and have experienced progressive pain on 100 mg / day . I have been extensively investigated ranging from intra- gut camera to laparotomy ! My dermatitis Herpetiformis is very dependent on dapsone and , having finally decided myself that my pain is dapsone related , i have started to reduce the daily dose by 50mgms without much recurrence of the DH blisters . Sadly this has not resulted in any improvement in the quality of the pain which remains severe especially in the early morning and afternoon . I am on a full gluten free diet and otherwise require oxycodone 20mgs to 80 mgs daily as well as a TENS unit .
    Seemingly , there is no overtly alternative drug to dapsone on the market , other than sulfa drugs . Does anyone have experience with any other drug as prophylaxis against dermatitis herpetiformis ? Also , does anyone use dapsone gel for breakthrough blisters from DH ?

    Post created 3 weeks 3 days ago

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