Epilepsy

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Support group for people who have Epilepsy, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • 47yo professional female life long generalized...

    47yo professional female

    life long generalized epilepsy
    Hodgkin's Lymphoma 1990-1991

    Post created 5 months 2 weeks ago

  • I have symptoms of Epstein Barr and I have taken D...

    I have symptoms of Epstein Barr and I have taken Dilantin for 20 years. I have been very stressed in the past 6 months due to being in the sandwich generation. I have two kids, one in college and living at home, the other applying for colleges. My father in law is in a nursing home and has been declared terminal. My mother in law is a very emotionally fragile woman who has sight and hearing deficits and depends on me to take her to her doctor appointments and to help her sort out her finances and now in the middle of filling out their nursing home medicaid form, I came down with mysterious symptoms. I have always had slightly swollen lymph nodes from the Dilantin that I take to prevent seizures (and thank God, it does). But, for 2 weeks my lymph nodes have been very tender and I have had sharp pains in them, especially on the left side of my neck. Also, pain in the abdomen. But, thank God, I can still eat. The last time I was this sick was about 9 years ago and I thought I had H1N1, but was never tested. Now I wonder if it was EBV. I go to see the doctor tomorrow to find out the results of my blood tests.

    Post created 6 months 5 days ago

  • I have symptoms of Epstein Barr and I have taken D...

    I have symptoms of Epstein Barr and I have taken Dilantin for 20 years. I have been very stressed in the past 6 months due to being in the sandwich generation. I have two kids, one in college and living at home, the other applying for colleges. My father in law is in a nursing home and has been declared terminal. My mother in law is a very emotionally fragile woman who has sight and hearing deficits and depends on me to take her to her doctor appointments and to help her sort out her finances and now in the middle of filling out their nursing home medicaid form, I came down with mysterious symptoms. I have always had slightly swollen lymph nodes from the Dilantin that I take to prevent seizures (and thank God, it does). But, for 2 weeks my lymph nodes have been very tender and I have had sharp pains in them, especially on the left side of my neck. Also, pain in the abdomen. But, thank God, I can still eat. The last time I was this sick was about 9 years ago and I thought I had H1N1, but was never tested. Now I wonder if it was EBV. I go to see the doctor tomorrow to find out the results of my blood tests.

    Post created 6 months 5 days ago

  • Hi 6 years ago, I was diagnoised with Encephal...

    Hi

    6 years ago, I was diagnoised with Encephalitis it all nearly killed me. At the time, just before I had a severe UTI and was on antibiotics. Since then I have had temperolobe absent seizures around 3-7 times a week, generally in a batch over a couple of days. I am taking a large does of Keppra 1500mg plus Lamictal 200mg twice a day, this doesn't stop it but I think it does improve things.

    Could the UTI be related to the start of this seizure disorder?

    Post created 6 months 3 weeks ago

  • Hello new to the group, I'm learning more every da...

    Hello new to the group, I'm learning more every day about myself, and reading more about being epileptic, I've lived with this my whole life not knowing thinking that it was normal to feel the random jerks or twitches or the waking up sick to my stomach with puking up acid, hurts a lot. Thought it was normal, I've always been I heavy pot smoker which I think helped why I've went this long seizure free. Now that I'm learning more, every things becoming more clearer .

    Post created 6 months 3 weeks ago

  • Dehydrated faint spells

    Hey there everyone! I am 21 and I have been taking 100 mg of zonisamide for my seizures for about a year now. I have not been diagnosed with low blood pressure. I do not exercise very much anymore and so I have recently begun a new routine because of new symptoms I've been experiencing. I have almost blacked out multiple times while in my home. At the times it felt like a seizures so I was trying to let it pass. I thought I was dehydrated so I would drink water and I would stop feeling faint. I found out later I wasn't getting enough air. Now when I feel that way I start taking deep breaths and now even I do push ups. Zonisamide helps prevent my seizures but makes it hard to get rid of my anxiety and chronic depression. I want to know if anyone else has had any similar experiences. I want to learn as much as possible. Thank you for sharing your time and possibly your knowledge.
    -Serenity

    Post created 7 months 1 week ago

  • Hi to all, My name is Curt. I passed out in Decem...

    Hi to all,
    My name is Curt. I passed out in December on December of 2015, when I stood up, fell on concrete floor hitting my head. Don't remember anything for 4 days. Woke up in intensive care. Had all the test, EEG, MRI, etc. Results all negative. Dr put me on Keppra. Have had no events since this. Dr is taking me off the Keppra by using Lyrica. I told the Dr I think I was just knocked out by the fall?? Was told that I was fighting with the EMTs who were working on me, and 'they' kept me out because of the fighting. Taking 500mg twice a day. Lyrica 75mg also twice a day. Coming off the Keppra, reducing the dosage each week for four weeks. Then on Lyrica only.
    Just started the dual dosage, feeling "spaced" and unbalanced at times. Don't feel like doing anything. LaLa Land

    Post created 7 months 4 weeks ago

  • I have Left Temporal Lobe Epilepsy & PLMD. I want ...

    I have Left Temporal Lobe Epilepsy & PLMD. I want to know how you find it affects your ability to function as a person when either your sleep is messed up and/or you have to be up and out extra earlier then would be normal?

    Just I'very had 2 days where I'very had to go to see 2 separate specialists at 2 London Hospitals & had to be up and out by 7-7.15am to get 2 trains there in time

    Also I'might drugged up to the eyeballs with medications that I find the side-effects of them all add to the equation.

    How are you affected by it & do you cope with being able to 'take care of yourself and look after yourself on your own? I actually live on my own & don't have family so that does make things harder for me.

    Would gratefully like to hear from anyone with both Epilepsy. & PLMD. I have also had Sub-Dural Depth Electrode Surgery in 1991 & a Left Temporal Lobectomy in 1992

    Post created 8 months 2 weeks ago

  • I am Betty and I have mild epilepsy since 2013. I ...

    I am Betty and I have mild epilepsy since 2013. I use tegretol 100mlg

    Post created 9 months 1 day ago

  • I am Betty and I have mild epilepsy since 2013. I ...

    I am Betty and I have mild epilepsy since 2013. I use tegretol 100mlg

    Post created 9 months 1 day ago