Factor V Leiden Mutation

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Support group for people who have Factor V Leiden Mutation, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • I have factor v Leiden and low testosterone levels...

    I have factor v Leiden and low testosterone levels. I have tried Viagra and it doesn't really work for me. Has anyone tried testosterone replacement despite the threat of DVT? What other options can I try?.

    Post created 7 months 3 days ago

  • can I take minastrin 24Fe or is it dangerous?

    can I take minastrin 24Fe or is it dangerous?

    Question created 7 months 4 weeks ago

  • I have Factor V Leiden and was recently prescribed...

    I have Factor V Leiden and was recently prescribed meloxicam... Should I be worried??

    Post created 8 months 3 weeks ago

  • Hi, I'm Adrienne and I have Factor V Lieden. I was...

    Hi, I'm Adrienne and I have Factor V Lieden. I was also recently diagnosed with Pleurisy and told to take Ibuprofen. If it doesn't work, I'm considering naproxen. I'm just not sure of the negative effects with my blood disorder.

    Post created 9 months 3 weeks ago

  • I am heterozygous and also have Bradycardia with s...

    I am heterozygous and also have Bradycardia with severe fatigue.

    Post created 10 months 3 days ago

  • My name is Glen, I had a stroke three years ago an...

    My name is Glen, I had a stroke three years ago and it was from a clotting disorder? I spent almost 6 months trying to get back to a normal life after a a stroke

    Post created 11 months 4 days ago

  • Is it necessary to be on Xeralto (or any blood thinner) for life?

    I had a mild stroke in July 2015. I have had MS for 15 years. Recent blood work showed I have two copies of the Factor V Leiden Mutation (homozygous). A doctor told me to take Xeralto immediately an said I would be on in for the rest of my life. Everything I have read on-line tells me Factor V Leiden mutations do NOT cause strokes. I have never had a blood clot and actually during a surgery about 3 years ago I experienced a great deal of internal bleeding and required a blood transfusion (2 pints). I am going to get a second opinion (appt. not until April) but I am wondering whether or not I really need to be on blood thinners for life. I was on Avonex for 15 years and did fine on it. A new MS dr. started switching my medication around and I got very sick on Copaxone and switched to Aubagio, but then found out the "new MS dr." was not suitable for me and switched again. Currently I am not taking medication for the MS but will probably go back on Avonex after I figure out this whole blood thing.

    Question created 1 year 1 week ago

  • Discovered I had Factor V Leiden 17 yrs ago when h...

    Discovered I had Factor V Leiden 17 yrs ago when hospitalized
    With a blood clot. Recently diagnosed with RA.

    Post created 1 year 3 weeks ago

  • Hi I am a 6o year old male. I just read about the...

    Hi I am a 6o year old male. I just read about the benefits of taking CoQ10 to counter taking Statins. I have Factor V Leiden and an concerned about the implications- I take an aspirin per day.

    Post created 1 year 1 month ago

  • I have factor V Leiden deficiency and Raynauds Dis...

    I have factor V Leiden deficiency and Raynauds Disease. I am wondering if these two diseases have a commonality. I suffer from chronic widespread pain as well and over the course of several years the pain is debilitating. I'm looking for any helpful answers to help me find a doctor that specializes in these disorders and help me manage the pain.

    Post created 1 year 1 month ago