Fibromyalgia

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Support group for people who have Fibromyalgia, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • With no prior history of migraines, they started w...

    With no prior history of migraines, they started when I was age 52. I was convinced there had to be an identifiable reason. All these years that reason escaped me, until I realized that was the same year I started taking Victoza. This week I stopped taking it, and if my migraines cease, I think I'll know for certain that was the cause. If I continue to have migraines, I'll be devastated.

    Post created 3 days 14 hours ago

  • Fibromyalgia and statins

    During 2006 due to sudden and severely increased intensity in FMS pain and exhaustion from FMS (I assumed coupled with Sleep Apnea) I accepted the necessity of closing my business, hiring weekly help to do my household tasks and allowing my husband to take over cooking as I could no longer stand long enough. Walks with my dog were a thing of the past. Being told I was a type “A” personality I couldn’t understand how I could let FMS take me down like this. I tried Lyrica but not only did it NOT relieve my pain, I lost weight, couldn’t concentrate long enough to watch a TV show, was sleepy all the time AND had sudden fluctuations in blood pressure and heart rate.
    Early 2008 I visited with a new Cardiologist who asked me if my FMS pain had increased after starting Lipitor the year before. Suddenly the time line seemed apparent. That’s when I stopped statin meds and went on a OTC med which kept my cholesterol around 210 but the good was really good and the bad wasn’t so bad.
    But early 2017 a cauterization showed an 80% blocked in main artery in back of heart. A stent was placed in my heart but I’ve been left with stable angina. The doctor says because I now have heart disease and 60 and 79 percent blockage of my carotid arteries my cholesterol must be less than 180. He started me on Repatha which I assumed was a NON STATIN cholesterol med. But based on the deterioration of my physical health/mental health and the intensity of pain plus what I read online it is not.
    PLEASE do I have any other treatment choice? My husband has been fighting cancer for over two years now and finally we learn it’s not going away. His condition changes from one day to the next and a number of times due to his reactions to chemo I’ve had to rush him to the hospital. I MUST be strong to care for him. I need to live and don’t want a stroke but please this pain is horrendous.

    Post created 4 days 19 hours ago

  • Fibromyalgia and statins

    During 2006 due to sudden and severely increased intensity in FMS pain and exhaustion from FMS (I assumed coupled with Sleep Apnea) I accepted the necessity of closing my business, hiring weekly help to do my household tasks and allowing my husband to take over cooking as I could no longer stand long enough. Walks with my dog were a thing of the past. Being told I was a type “A” personality I couldn’t understand how I could let FMS take me down like this. I tried Lyrica but not only did it NOT relieve my pain, I lost weight, couldn’t concentrate long enough to watch a TV show, was sleepy all the time AND had sudden fluctuations in blood pressure and heart rate.
    Early 2008 I visited with a new Cardiologist who asked me if my FMS pain had increased after starting Lipitor the year before. Suddenly the time line seemed apparent. That’s when I stopped statin meds and went on a OTC med which kept my cholesterol around 210 but the good was really good and the bad wasn’t so bad.
    But early 2017 a cauterization showed an 80% blocked in main artery in back of heart. A stent was placed in my heart but I’ve been left with stable angina. The doctor says because I now have heart disease and 60 and 79 percent blockage of my carotid arteries my cholesterol must be less than 180. He started me on Repatha which I assumed was a NON STATIN cholesterol med. But based on the deterioration of my physical health/mental health and the intensity of pain plus what I read online it is not.
    PLEASE do I have any other treatment choice? My husband has been fighting cancer for over two years now and finally we learn it’s not going away. His condition changes from one day to the next and a number of times due to his reactions to chemo I’ve had to rush him to the hospital. I MUST be strong to care for him. I need to live and don’t want a stroke but please this pain is horrendous.

    Post created 4 days 19 hours ago

  • Fibromyalgia and statins

    During 2006 due to sudden and severely increased intensity in FMS pain and exhaustion from FMS (I assumed coupled with Sleep Apnea) I accepted the necessity of closing my business, hiring weekly help to do my household tasks and allowing my husband to take over cooking as I could no longer stand long enough. Walks with my dog were a thing of the past. Being told I was a type “A” personality I couldn’t understand how I could let FMS take me down like this. I tried Lyrica but not only did it NOT relieve my pain, I lost weight, couldn’t concentrate long enough to watch a TV show, was sleepy all the time AND had sudden fluctuations in blood pressure and heart rate.
    Early 2008 I visited with a new Cardiologist who asked me if my FMS pain had increased after starting Lipitor the year before. Suddenly the time line seemed apparent. That’s when I stopped statin meds and went on a OTC med which kept my cholesterol around 210 but the good was really good and the bad wasn’t so bad.
    But early 2017 a cauterization showed an 80% blocked in main artery in back of heart. A stent was placed in my heart but I’ve been left with stable angina. The doctor says because I now have heart disease and 60 and 79 percent blockage of my carotid arteries my cholesterol must be less than 180. He started me on Repatha which I assumed was a NON STATIN cholesterol med. But based on the deterioration of my physical health/mental health and the intensity of pain plus what I read online it is not.
    PLEASE do I have any other treatment choice? My husband has been fighting cancer for over two years now and finally we learn it’s not going away. His condition changes from one day to the next and a number of times due to his reactions to chemo I’ve had to rush him to the hospital. I MUST be strong to care for him. I need to live and don’t want a stroke but please this pain is horrendous.

    Post created 4 days 19 hours ago

  • Soon to become age 80, female, was diagnosed with ...

    Soon to become age 80, female, was diagnosed with Graves Disease more than 30 years ago, developed RAI induced hypothyroidism, then was diagnosed with fibromyalgia 20 years ago; diagnosed with macular degeneration 6 years ago....... one eye dry, other eye wet, and have been receiving injections in that eye since diagnosis. I suffer from continuous, horrible pain, you name it, and would like to find a painkiller that doesn't affect my eye disease. Advil worked beautifully, until I discovered last week that it is contraindicated for AMD. Can anyone recommend an effective painkiller for me? Thanks in advance, Betty in Barrie, Ontario, Canada.

    Post created 1 week 1 day ago

  • I have had a leg amputated and the phantom pain is...

    I have had a leg amputated and the phantom pain is worse than fibro. pain. I have been wondering if this is typical if related etc.

    Post created 1 week 6 days ago

  • Been up and down throughout my lifetime wondering ...

    Been up and down throughout my lifetime wondering why I felt so out of sync with this mind and body.I didn't ever think that it could happen so fast within a blink of an eye, which changed my life after my last set of children.

    Post created 2 weeks 4 days ago

  • Yes, I have been suffering for almost a year with ...

    Yes, I have been suffering for almost a year with constant burping. I have done every test you can think of with my gastro Dr. and he can't find anything wrong. In the meantime is destroying my life. Do you think it might have anything to do with my Fibromyalgia?
    Please help..

    Post created 3 weeks 8 hours ago

  • Hi. I'm using 25mg fentenyl patches for fibromyalg...

    Hi. I'm using 25mg fentenyl patches for fibromyalgia pain bur want to seriously lose some weight. Would it be safe to use garcinia combogia with the patches?

    Question created 3 weeks 16 hours ago

  • Hi, I have tourettes syndrome and have just been d...

    Hi, I have tourettes syndrome and have just been diagnosed with fibromyalgia.

    Post created 3 weeks 2 days ago