Idiopathic Thrombocytopenic Purpura

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Support group for people who have Idiopathic Thrombocytopenic Purpura, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Changing therapies...

    I have a history of ITP, Autoimmune Hemolytic Anemia and Evan's Syndrome. I was diagnosed with cutaneous squamous cell carcinoma several months ago and started a targeted therapy of Cetuximab (Erbitux). The cancer hadIdio infiltrated the lymph nodes in my head and neck and is metastatic. I have been told that the next step would be immune therapy (Anti-PD-1) but it is much riskier due to my history of ITP. Has anyone had success with this therapy and could you share your information with me?

    Post created 2 weeks 4 days ago

  • ITP, shortness of breath, anemia and on beginning ...

    ITP, shortness of breath, anemia and on beginning doses of NPLATE.

    Post created 1 month 5 days ago

  • I now have IT. Don't know if it will be a one time...

    I now have IT. Don't know if it will be a one time episode or chronic yet. I also have stage 4 liver disease cirrhosis. my platelets dropped to 5 and I was covered in bruises. had platelet transfusions now on steroid treatments they are up to 42. I have been on Toprimate for years now for tge psin of fibromyalgia. It truly helps but just found out it may have caused this ITP. Anyone else have this happen because of taking Toprimate?
    Thanks!
    Lori

    Post created 1 month 1 week ago

  • Anyone suffering severe itching on bruises or heal...

    Anyone suffering severe itching on bruises or healing skin - could it be the fibro overreacting within the healing process. Everyone is stumped. Thanks

    Post created 1 month 3 weeks ago

  • I have been drinking home brew kombucha for over a...

    I have been drinking home brew kombucha for over a year. And today im diagnosed with ITP. My thrombocyte cound is only 80k.
    Is kombucha the culprit? Should i stop drinking it?

    Post created 2 months 4 days ago

  • Hello ladies I have just started 3 Rd line week...

    Hello ladies

    I have just started 3 Rd line weekly taxol because of iTP which was just diagnosed
    Just wondering if I could share and maybe those of you could
    Give me some ideas of what to expect

    Mary

    Post created 6 months 1 week ago

  • My daughter (8.5) has precocious puberty and newly...

    My daughter (8.5) has precocious puberty and newly onset ITP this month. She has had one dose of IVIG, her platelets increased, but now appear to be decreasing again. I am wondering if the treatment for PP could have something to do with ITP

    Post created 7 months 1 day ago

  • Eliquis and ITP

    After being treated for ITP for several months on high doses of prednisone, 120mg daily, I developed many pulmonary embolisms in both lungs at same time, December 2015. Started on Warfarin and just a month ago the doc switched me to Eliquis after being off warfarin for a few weeks due to a kidney stone, which was causing me to bleed. He took that opportunity to switch me to Eliquis. Has anyone else switch from warfarin to eliquis, and did you have effects?

    Question created 8 months 3 weeks ago

  • Tendon pain and ITP

    Has anyone else experienced tendon pain during and after treatment for ITP?

    Question created 8 months 3 weeks ago

  • not right now

    not right now

    Post created 9 months 3 weeks ago