Support group for people who have Locked-in Syndrome, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
How many people with MS have locked in syndrome?
Post created 3 weeks 2 days ago
About 3 years ago I had a hysterectomy as they where prepping me for surgery they gave me versed. I moved over on to the surgery table looked up at the nurse to tell her I was having trouble breathing. I couldn't speak I flopped back on the table not breathing and unable to move. I was aware of all the conversations of the anesthesiologist breathing for me. Him telling a nurse to page another doctor but to tell him it's not an emergency. I was sitting there screaming in my brain I am unable to move or breath how is this not an emergency? I still have flash backs to it.
Post created 2 months 4 days ago
I am worried that my dad has developed locked in syndrome (though there is no diagnosis).
Post created 1 year 7 months ago
Hi I'm 48 on menopause and have locked in syndrome , scared 😕
Post created 2 years 9 months ago