Narcolepsy

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Support group for people who have Narcolepsy, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Hello, I've been diagnosed with sleep disorders in...

    Hello, I've been diagnosed with sleep disorders including narcolepsy and then Sjogrens by neurologists.

    Post created 20 hours 54 min ago

  • I am lost. I was diagnosed with narcolepsy and I s...

    I am lost. I was diagnosed with narcolepsy and I seem to have developed a drinking problem.

    Post created 2 weeks 6 days ago

  • Be positive, be thankful, be kind and loving! I'v...

    Be positive, be thankful, be kind and loving!
    I've been through: T2, OSA, Lyme's, Narcolepsy and a diagnosis of cancer.
    The LORD is good...

    Post created 1 month 6 days ago

  • Be positive, be thankful, be kind and loving! I'v...

    Be positive, be thankful, be kind and loving!
    I've been through: T2, OSA, Lyme's, Narcolepsy and a diagnosis of cancer.
    The LORD is good...

    Post created 1 month 6 days ago

  • Hi, I'm new here...was diagnosed with narcolepsy f...

    Hi, I'm new here...was diagnosed with narcolepsy first, but have had digestive issues since childhood...recently diagnose with crohn's also. I am just having a really hard time...its been pain every day and i can barely function i am so tired..anyone have any tips or advice?? Im open to any suggestions.

    Post created 2 months 2 weeks ago

  • My 15 year was just diagnosed with both narcolepsy...

    My 15 year was just diagnosed with both narcolepsy with cataplexy and hypothyroidism. We saw a sleep specialist who just prescribed her medication and informed her she may never be able to drive. Thyroid disease runs in my family. Should we seek a 2nd option?

    Post created 3 months 1 day ago

  • I'm a 62 yr old woman with severe ankylosing spond...

    I'm a 62 yr old woman with severe ankylosing spondylitis (AS) & associated chronic back pain & fatigue controlled by Remicade every 6 weeks. I also take naproxen, baclofen & oxycocet for pain relief. Recently the side effect of sleepiness after 1 to 2 days has become uncontrollable narcolepsy. I fall asleep without warning with my iPhone in my hand whilst surfing the Net. The iPhone either drops to the floor or it hits me in the mouth if I'm lying down (painful!) Nothing helps my severe pain that doesn't make me sleepy!

    Post created 5 months 1 week ago

  • The tremors scared me for awhile and it also doesn...

    The tremors scared me for awhile and it also doesn't help I take meds that cause tremors. I drop small objects and can get quite frustrated.

    Post created 5 months 1 week ago

  • My husband was just diagnosed with Narcolepsy with...

    My husband was just diagnosed with Narcolepsy with Cataplexy, I believe he also has Dementia. We are going through more neurological testing. I'm trying to understand all I can about the changes my husband is going through.

    Post created 5 months 1 week ago

  • I have narcolepsy and was diagnosed over 10 years ...

    I have narcolepsy and was diagnosed over 10 years ago. Started on Provigil and when that stopped working 3 years ago, went on Nuvigil. Started to have neck pain about the time I started Provigil. Dr. Put me on Cymbalta about 2 years ago. I noticed that I have a hard time concentrating and I get irritable quickly. Anyone else with the same problem and what have you done about it?

    Post created 5 months 4 weeks ago