Narcolepsy

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Support group for people who have Narcolepsy, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • I have narcolepsy and was diagnosed over 10 years ...

    I have narcolepsy and was diagnosed over 10 years ago. Started on Provigil and when that stopped working 3 years ago, went on Nuvigil. Started to have neck pain about the time I started Provigil. Dr. Put me on Cymbalta about 2 years ago. I noticed that I have a hard time concentrating and I get irritable quickly. Anyone else with the same problem and what have you done about it?

    Post created 1 week 1 day ago

  • Hello I'm sure most of not all of you are adults h...

    Hello I'm sure most of not all of you are adults however my child is 13 and was diagnosed as a type 2 diabetic 11/16 however she was just diagnosed as a narcoleptic I feel her narcolepsy brought on the diabetes. I'm sure the narcolepsy was the underlying cause. Does anyone else feel the same?

    Post created 2 weeks 3 days ago

  • Just Curious

    If there is a linkage between Normal Pressure Hydrocephalus ("NPH") and Narcolepsy ("NPY") has there been any studies or even speculation as to the relationship between the two conditions?

    Same question as between NPH& sleep apnea?

    Last question---for now: Anyone with experience of NPH apparently successfully treated with a shunt and then two recurrences of return of the NPH followed by adjustment of the valve on the shunt. The valve is now "wide open" and the NPH is returning. My neurosurgeon does not have any other arrows in his quiver. Any suggestion as to future treatment(s)?

    Thank you.

    Matthew Forstadt
    Forstadtlaw@Gmail.com

    Question created 1 month 6 days ago

  • I have been diagnosed with narcolepsy since 2011 a...

    I have been diagnosed with narcolepsy since 2011 and have beef dealing with Parosmia since November

    Post created 1 month 1 week ago

  • Narcolepsy and Raynaud's

    I'm 20 and have had narcolepsy since I was 14. I've been on Xyrem for about 4 years. For the last year, I've been dealing with Raynaud's. Does anyone else have problems with taking Xyrem and now have Raynaud's?

    Post created 2 months 2 weeks ago

  • Narcolepsy and Raynaud's

    I'm 20 and have had narcolepsy since I was 14. I've been on Xyrem for about 4 years. For the last year, I've been dealing with Raynaud's. Does anyone else have problems with taking Xyrem and now have Raynaud's?

    Post created 2 months 2 weeks ago

  • Narcolepsy and Raynaud's

    I'm 20 and have had narcolepsy since I was 14. I've been on Xyrem for about 4 years. For the last year, I've been dealing with Raynaud's. Does anyone else have problems with taking Xyrem and now have Raynaud's?

    Post created 2 months 2 weeks ago

  • Recently arrested at Target and am TERRIFIED! The ...

    Recently arrested at Target and am TERRIFIED! The manager says that he has video of me walking out with unpaid merchandise on other occasions. A few months ago I posted on Facebook that I recently found a bunch of items in the trunk of my car that were unpaid for from Target. I have no recollection of buying them so I returned them to the store. I assumed this was due to automatic behavior. Due to the amount of stuff that the manager says that I have taken in the past, I'm terrified that I'm looking at serious jail time! Any advice or suggestions? I'm 52 years old and have never been in trouble with the law before.

    Post created 2 months 3 weeks ago

  • Hello, I am researching treatments for my daughter...

    Hello, I am researching treatments for my daughter who has just been diagnosed with Narcolepsy with cataplexy. I came across this group and would be very interested in hearing about your experiences with L-Citrulline or anything else that you have found to be helpful. Thanks.

    Post created 4 months 6 days ago

  • Hello, I am researching treatments for my daughter...

    Hello, I am researching treatments for my daughter who has just been diagnosed with Narcolepsy with cataplexy. I came across this group and would be very interested in hearing about your experiences with L-Citrulline or anything else that you have found to be helpful. Thanks.

    Post created 4 months 5 days ago