Onfi

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Support group for people who take Onfi, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Starting to have trouble breathing

    Starting to have trouble breathing

    Post created 2 days 17 hours ago

  • Wanted to know the risk of heat stroke with onfi

    Wanted to know the risk of heat stroke with onfi

    Post created 1 week 3 days ago

  • How can you stop your hair from falling out while ...

    How can you stop your hair from falling out while taking this medication

    Post created 2 months 1 week ago

  • My husband had a brain injury over two months ago....

    My husband had a brain injury over two months ago. He has a lot of muscle spasticity, he is in three doses of baclofen 20mg daily and seems not to be helping him. Can you tell me something about ONFI for my husband ?

    Post created 7 months 1 week ago

  • I currently take 4 mg of xanax for anxiety due to ...

    I currently take 4 mg of xanax for anxiety due to seizures and Onfi was just added to the list of drugs to help with side effects from Vimpat. Vimpat does not seem to help with seizures but its only been 2 months. Wondering what to expect with Onfi?

    Post created 8 months 4 days ago

  • Does anyone have extreme moods that they are all of a sudden much longer than usual (eg, my mania is for a day, but now after being on roaccutane I have been in a manic episode for 5 days.

    Having bipolar is a curse. Since starting roaccutane almost two weeks ago, I have started having heavy to extreme mood swings for 5-7 days straight and it's becoming really upsetting for everyone around me. I am also extremely negative and find no pleasure in even the simplest of things.

    Has anyone else perhaps had such side affects? Usually my mania (anger) last a day or so noy nearly a week!

    Question created 1 year 3 months ago

  • Hi, I have been taking 15 mg Onfi for 4 yrs no iss...

    Hi, I have been taking 15 mg Onfi for 4 yrs no issues. Now doubled and having sleep interruption and lucid HD dreams.

    Post created 1 year 5 months ago

  • HI :) I am the mom of a 17 year old female with L...

    HI :) I am the mom of a 17 year old female with LGS. She has been taking Onfi for awhile now but the swallowing and sometimes choking problems seem to be getting worse. I am very interested to hear your stories/thought since I know you all "get It". Haven't joined a group since she was a baby diagnosed with West Syndrome/Infantile Spasms. I look forward to getting to know the group!

    Post created 1 year 5 months ago

  • Hi, I started taking onfi about 4 months ago. It d...

    Hi, I started taking onfi about 4 months ago. It does not work to control my partial seizures and is making my vision distorted and see things that aren't there. Is anyone else experiencing this. I am currently weaning off the drug but it is going to be a slow process. I'd like to hear from others having trouble

    Post created 1 year 5 months ago

  • Hi. My husband started taking Onfi not quite a mo...

    Hi. My husband started taking Onfi not quite a month ago. Current titration, started last night, is 15MG. He's getting off Clonazepam, current titration is .75MG (not a full MG). He's also on 2750MG of Sabril per day (!500MG AM and
    1250MG PM). We'll be trying to lower the Sabril some more once he's fully on Onfi and off of Clonazepam. In any event, having just started the higher does of Onfi last night (and lower dose of Clonazepam last night), this morning he's had really bad high blood pressure. He takes Amlodopine and Metoprolol for BP as well as 250GM magnesium twice a day. He's been given his morning Amlo and Metoprolol as well as 250MG of magnesium, but his Systolic (both arms) is still in the 160 range and Dystolic (both arms( is in the 110 range. This is unusual for him as his blood pressure has been pretty well holding steady
    at normal levels. Has anyone had a problem with Onfi and high blood pressure?

    Post created 1 year 7 months ago