Orencia

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Support group for people who take Orencia, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • Started Orencia infusions in June of 2016. My chol...

    Started Orencia infusions in June of 2016. My cholesterol numbers on recent labs are 100 pts high on both good & bad cholesterol numbers. They stopped infusions in Aug this year & are resuming in 2 days- should I be concerned. This has not been addressed by my rheumy or primary dr

    Post created 5 days 18 hours ago

  • Week 3 of Orencia. Lots of itching, facial flushin...

    Week 3 of Orencia. Lots of itching, facial flushing, as well as bilateral leg pain, especially at night. Can anyone give me an idea whether or not this is temporary? Or is this my new normal. Thank you in advance for your responses. Oh, also some pretty good heartburn. Thanks!

    Post created 1 week 4 days ago

  • Just started with my first dose of orencia 3 days ...

    Just started with my first dose of orencia 3 days ago, have been on methotrexate x 2 years now. I feel like I have been hit by a bus. Increased joint pain, continuous cough and runny nose, headache, fatigue. Does anyone know if this is normal? And do these symptoms fade once orencia is in your system longer?

    Post created 3 weeks 2 days ago

  • I have not had my R knee replaced yet, however, Or...

    I have not had my R knee replaced yet, however, Orencia is a perfect medication for me. I also take prednisone boo ...but I can't live without it. Thanks

    Post created 4 weeks 13 hours ago

  • I did not know there was a support group specifica...

    I did not know there was a support group specifically for people taking Orencia and get frequent UTI'S! I have been on Humira and now Orencia and have experience 4 urinary tract infections over a year , more than I have had in my 64 years of life! Wasn't sure if it was due o taking a biologic or not! JB

    Post created 1 month 23 hours ago

  • Will memory loss associated with Abatacept reverse...

    Will memory loss associated with Abatacept reverse if the drug is stopped?

    Question created 1 month 2 weeks ago

  • Have been on Orencia approx 2 years. Am very tired...

    Have been on Orencia approx 2 years. Am very tired all the time. Anyone else have this issue and/or a fix for the problem?
    Thanks

    Post created 2 months 2 weeks ago

  • Hello, I'm new here. Have developed COPD while on ...

    Hello, I'm new here. Have developed COPD while on Orencia.
    Maybe because I am a former smoker. Anything else I could try for RA? Thanks.

    Post created 2 months 2 weeks ago

  • I have been on Orencia for one year now for RA. I...

    I have been on Orencia for one year now for RA. I have never had tooth abcess's so bad my teeth needed to be extracted! Have had THREE molars in one year removed due to infection which erupted quickly and could not be controlled. I have emaculate dental hygiene and always have.
    after speaking with my rheumatologist about this at my dentist urging- she admitted it could be the suppression of immune system which allows bacteria to fester in gums. Great- she tells me this AFTER I loose all my chewing teeth!
    I feel this company ' Orencia" should have in BIG letters to users this fact. I would have NEVER gone on this med if I was alerted of this.

    Post created 2 months 2 weeks ago

  • I took a holiday from Orencia for about a month. W...

    I took a holiday from Orencia for about a month. Was taking Phentermine at smallest dose and my appetite was suppressed considerably. Started up Orencia again because my RA was getting quite active, and the Phentermine is no longer working, even after doubling the dose. I'd love to know if anyone found a solution that is working, even a little.

    Post created 2 months 3 weeks ago