Peripheral Neuropathy

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Support group for people who have Peripheral Neuropathy, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • My neuropathy started around 2011 from taking doxy...

    My neuropathy started around 2011 from taking doxycycline. When I quit that medication my neuropathy got better. Recently I developed AFib and take Flecainide and my neuropathy is back with a vengeance. I can't get any sleep. Has anyone quit Flecainide and had their neuropathy get better?

    Post created 2 days 8 hours ago

  • Looking forward to joining the group.

    Looking forward to joining the group.

    Post created 4 days 20 hours ago

  • My husband has kidney stones and neuropathy. Any ...

    My husband has kidney stones and neuropathy. Any suggestions to help with the pain would be greatly appreciated.

    Post created 1 week 2 days ago

  • I have been taking HCT 12.5 mg/2QD and a potassium...

    I have been taking HCT 12.5 mg/2QD and a potassium supplement Potassium CL ER 20 MG 2QD for nearly 10 years now for control of elevated BP.

    I started care with an osteopathic MD for treatment of my short fiber peripheral neuropathy in my lower legs and feet.

    The side effects that HCL may cause is to worsen my neuropathy sysmptoms.

    Has anyone stopped the HCL and seen any effect on the neuropathy symptoms?

    I am in search of another way to control the elevated BP.

    Thanks in Advance for your feedback.

    Chet

    Post created 1 week 2 days ago

  • I was diagnosed with PN earlier year and been look...

    I was diagnosed with PN earlier year and been looking for a support group.
    Thank you for this group I’m looking forward to learning more.

    Post created 1 week 6 days ago

  • I have been on 3000mg Keppra since left temporal l...

    I have been on 3000mg Keppra since left temporal lobectomy in November 2008. I developed neuropathy years ago after starting on Keppra. I finally realized it would manifest shortly after taking my meds. Nothing will stop it, it goes on for hours and hours then I may get some relief if I continue to stay upright and walk. Miserable !! I am seeing a new neuro now, to try to titrate off of the Keppra.... so far I have titrated down to 1500mg but still have the neuropathy and generalized body aches. Also excessive weight gain and now diagnosed as pre-diabetic ... one side effect after another !! Has anyone had any severe issues titrating completely off the Keppra ? I'm so anxious to be totally free of this drug !! It did it's job of keeping me seizure free for 8 years but i don't know if I may just not have seizures any longer after the lobectomy, and after so long I'm just suffering the side effects of the medication that I may not even need anymore ??!! Please reply if you have any answers that may help me !! Thank you !!

    Post created 2 weeks 4 days ago

  • neuropathy : paresthesia, burning all over heada...

    neuropathy : paresthesia, burning all over
    headaches
    vomiting
    frequent cystitis
    frequent respiratory tract infections
    frequent allergic reactions
    low Mg
    low iron
    low phosphorus

    Post created 3 weeks 17 hours ago

  • I am a 39 year old female who has has a had tough ...

    I am a 39 year old female who has has a had tough time with illnesses beginning 4 years ago. I am diagnosed with a few things but the Fibromyalgia, Neuropathy, Parasomnia, Sleepwalking. I have a really hard time understanding how I am to try to keep a positive life with illnesses that will only get worse and it is hard to believe I have not been able to get the right medicine and not to be unable to raise my 2 wonderful children so I don't like to take much during the day which I believe when it is bedtime comes I suffer so much because by then all my pain, and worries peak. I hope to meet one or two people that suffer the same as I do. It is hard because I tend to hide in my home and I need support.

    Post created 3 weeks 1 day ago

  • I took Imuran for 17 years at maximum dose 150mg a...

    I took Imuran for 17 years at maximum dose 150mg and I weigh 150lbs. After several years I developed Peripheral Neuropathy and various skin cancers. My dermatologist suggested Imuran could be the cause of the skin cancers. I stop immediately using Imuran and switched GI doctors. My skin cancers ceased after a year. I am wondering if there could be a connection with imuran and Peripheral Neuropathy ? Any advice?

    Post created 3 weeks 4 days ago

  • I got instant neuropathy when emergency room doct...

    I got instant neuropathy when emergency room doctor injected me with morphine

    Post created 1 month 3 days ago