Support group for people who have Primary Thrombocythemia, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
Not happy with my headache/neck pain, both of which started as soon as I began taking hydroxyurea. (Dosage 500mg 6 times weekly)
Now wondering if I start enjoying grapefruit (not taken within 4 hours of dosing of hydroxyurea, which I take 1st thing in the morning.
Post created 2 days 3 hours ago
I have been diagnosed with ET for close to a year. Platelets not going down with hydroxyurea. Periodic vaginal spotting and I'm postmenopausal. Any other women experiencing this?
Post created 3 days 9 hours ago
I was just diagnosed with ET at 38 years old. I have four kids. The oldest is 5 and my baby is 4 months old. I am very scared and want to be here to raise my babies. I am interested in natural remedies if they will work after all of the negative things I have read about the side effects of the drugs. Please let me know if garlic is helping.
Post created 5 days 17 hours ago
Hi everyone I have had HS for 40 years just recently told I have ET hope to learn from you all and make some new friends 💗
Post created 2 weeks 2 days ago
Had ET since 2005 had two tia been on hydra now they have added xarelto anyone on those two drugs with ET?
Post created 1 month 3 weeks ago
Hi I'm 63 years old, female and have had Essential Thrombocytheamia for the past 2 years. I hate it.
Post created 3 months 2 weeks ago
Looking for comments on treatment of ET and PN.
Post created 8 months 1 week ago
ET for 3 +years on hydroxeria, low hemoglobin and have Peripheral Neuropathy.
Post created 8 months 3 weeks ago
Hello. Does anyone of you take Hydroxyurea and Pills (for PCOS) at the same time?
Post created 9 months 1 week ago
I take high does liposomal Vit C for essential thrombocytosis to see if it helps lower my platelet numbers. Anyone else??
Post created 10 months 1 week ago
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