Support group for people who have Tuberous Sclerosis, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.
This is Andrea from Ohio. I am 53 years old and was recently diagnosed with bilateral angiomyolipoma, possibly caused by tuberous sclerosis, My doctor is recommending the drug AFINITOR.
Post created 2 months 2 weeks ago
I HAVE TUBEROUS SCLEROSIS INHERITED FROM MY MOTHER. MY ELDER BROTHER HAS IT TOO
PERIPHERAL NEUROPATHY STARTED 13 YEARS AGO
HAD BRAIN STEM STROKE 3 YEARS AGO WITH LEFT SIDED WEAKNESS
Post created 1 year 2 months ago
Neuropathy satarted in 2001,my mother had Tuberous Sclerosis, myself and my older brother has it too. My neurologist said that I had Multiple Sclerosis too, because she thought the tubers on my brain were Dawson finger. Ms test came back negative.I had a brain stem stroke 3 years ago
Post created 1 year 3 months ago