Tuberous Sclerosis

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Support group for people who have Tuberous Sclerosis, created by eHealthMe (http://www.eHealthMe.com). To join the group, do any of these: create a post to introduce yourself, ask a question, or simply follow the group.

  • This is Andrea from Ohio. I am 53 years old and wa...

    This is Andrea from Ohio. I am 53 years old and was recently diagnosed with bilateral angiomyolipoma, possibly caused by tuberous sclerosis, My doctor is recommending the drug AFINITOR.

    Post created 2 months 2 weeks ago

  • TUBEROUS SCLEROSIS WITH PERIPHERAL NEUROPATHY

    I HAVE TUBEROUS SCLEROSIS INHERITED FROM MY MOTHER. MY ELDER BROTHER HAS IT TOO
    PERIPHERAL NEUROPATHY STARTED 13 YEARS AGO
    HAD BRAIN STEM STROKE 3 YEARS AGO WITH LEFT SIDED WEAKNESS

    Post created 1 year 2 months ago

  • Neuropathy satarted in 2001,my mother had Tuberous...

    Neuropathy satarted in 2001,my mother had Tuberous Sclerosis, myself and my older brother has it too. My neurologist said that I had Multiple Sclerosis too, because she thought the tubers on my brain were Dawson finger. Ms test came back negative.I had a brain stem stroke 3 years ago

    Post created 1 year 3 months ago

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